Name of Charity: The Butterfly Children Charity, DEBRA Spain

Register number: 119883

Contact name: Charo Van Hulst

Contact number: 619 50 51 80 / 666 33 79 78

Contact email address:

C/ Jacinto Benavente No.12,
Marbella, 29601,

Brief description:

DEBRA Spain is the national charity working on behalf of people in Spain with the genetic skin blistering condition Epidermolysis Bullosa (EB).

DEBRA Spain (the Butterfly Children Charity) is a non-governmental organization formed by people with EB, a team of social and health professionals specialized in EB, as well as friends and collaborators.

It was founded in 1993 and is designated as a “registered and audited charity” by the Internal Affairs Ministry of Spain.

Next event / news:

This year DEBRA, the Butterfly Children Charity celebrates its 25th anniversary. We have many events ongoing throughout the year please visit or our Facebook Page for more information.